• Home
  • Thoughts
  • Education
  • Family
  • Cooking
  • Projects
  • About

Radioactive Elephant

Not just another “mom” blog.

The Beauty Between

I have a confession: I’m not that trendy. I’m not an early adopter. In fact, with most trendy things, I give it about a year before I even try them. High waisted skinny jeans were popular and even my middle school students were wearing them, but once I realized they held my “mom” tummy tight: BAM, I was all on board. Same goes with music, maybe a student recommends something or my hipster husband sends me a playlist. But I’m never the first to discover anything.

It’s not new, but I’ve been listening to Kings Kaliedscope’s Album the Beauty Between. (It’s like two years old now) It’s been on repeat since summer depending on my mood. The lyrics go like this:

I couldn’t wait for the summer
But now I’m missing the spring
And I exhausted the winter
Craving what it couldn’t bring
Painting the world to be hopeless
Painting it perfect and fine
Put what I want on the canvas
Every color I design
How do I hold all of the discord?
All of my answers collide
Fightin’ for progress in quicksand
There’s no truth between the pride
Nobody sees all the pieces
Tricky to balance a beast
I am a pendulum swinging
Still I know You’re holding me

When the sky is falling, when life is a dream
I fortunately fall into the beauty between
Only God above me, painting my scene
I fortunately fall into the beauty between

I sometimes worry I only write about the hardships of having a child with special needs. Yes, there are hardships. Yes, I have learned more and had to be stronger than I ever thought possible. Yes, my life is a rollercoaster ride of highs and lows. But I would really like you to the see the high points and the Beauty Between.

  • The ear to ear smiles
  • The big hugs
  • The abounding laughter
  • The silly poses
  • The relentless giggles

Autism can feel like trying to put a square peg in a round hole. Or comparing apples to oranges and your kid is a pineapple. While I want my child to be a functioning member of society, to comply with rules, and to have empathy for others, sometimes I really do like that he is square pineapple.

I like that he memorized lines to movies and books before he could speak in self created original sentences.

I like that he remembers… everything.

I like that he will hold me to a checklist.

I like that he sometimes speaks in a British accent for no reason. Or Australian. (Or at least no reason that I understand)

I like that he has his own little world. When he tells me stories of that world, it’s like I’m there. I love his stories.

I like that everything is an adventure with him.

I absolutely love my child, not in spite of his special needs, and not because of it either. I love him because he is unique; that uniqueness is ingrained into his very core.

So, what I want you to know is this: your child having special needs is not the worst thing that could possibly happen. Yes, it’s hard. Yes, you will grieve the life you thought you would have had. Yes, you will have days where you want to scream or pull your hair out or BOTH!

And yet, I will continue to write about the low points, the struggles, the challenges and share any strategies that might help others.

But I don’t want you to miss the Beauty Between.

 

When the sky is falling, when life is a dream
I fortunately fall into the beauty between
Only God above me, painting my scene
I fortunately fall into the beauty between

 

Welcome to Voices of Special Needs Blog Hop — a monthly gathering of posts from special needs bloggers hosted by The Sensory Spectrum and Mommy Evolution. Click on the links below to read stories from other bloggers about having a special needs kiddo — from Sensory Processing Disorder to ADHD, from Autism to Dyslexia! Want to join in on next month’s Voices of Special Needs Hop? Click here!

 

You are invited to the Inlinkz link party!

Click here to enter

March 12, 2019 Cassi Sultemeier Autism, Family 2 Comments

2019: Let’s do this!

I like watching zombie movies and other dystopian fiction. I always try to figure out how long I would make it in the same senecio. I mean, I figure I would make it past the first wave of attacks. But as soon as I got hurt, the temperature got too cold, I had to sleep outside or go without a snack for more than 5 minutes… I would be done. I would die of a cold or something lame.

I’ve never thought of myself as physically tough. I wanted my word for the year to be strength. I want strength! Because the going has been tough in some places.

Like in the last couple of months. Back to school time, as both a teacher and a mom, was arduous for sure. Then, challenging behaviors, setting routines, teaching social skills to my 6 year old with Autism… yeah that’s been kinda hard. Well, not terrible, but just hard enough to disappoint me and interfere with my plans. One crappy school drop off, then I’m late for work. Again. And my two year old developed asthma. In general, I’ve been pooped on, thrown up on, coughed on and had plenty of minor mommy type setbacks to my daily routine.

However, I’ve got a bunch of wonderful parts of my life. Actually, it’s all beautiful. It’s just been a rollercoaster ride. Success and then regression. And I keep waiting for it to get easier. But seriously, I’m not sure it is supposed to be easy? Who said life was intended to be all ups and no downs?

But that’s what you say to new moms isn’t it? “Don’t worry. It gets easier.” And while you grow as a parent and gain experience, I would challenge that and say, it doesn’t get easier. Once you master one challenge, you get a new one to figure out. And then another.

Conflict and challenges. Isn’t that what makes a great story? The main character overcoming obstacles along their journey. Epic tales are filled with conflict and adventure.

Maybe life is just hard sometimes? No reason; It just is. And maybe it allows me to write an interesting story. I really need to quit comparing because…

“It’s rough all over Pony Boy.” -SE Hinton The Outsiders

It really is. Everyone has their own battles. But sometimes I fail to see past my own story, or I compare my situation to others far to often and create my own disappointments.

This year, I had a friend whose son suddenly started having seizures. Test after test and months of investigation, And then he had to have brain surgery. Her ten year old son had brain surgery! It was scary! (Now, he is doing amazingly! He is all good, and this NYE they celebrated life, goodness and the abundance they have been given. Yay!)

I’m just saying “NO” to easy this year. I’m not even hoping for easy, but I do want to persevere. I want to persevere in the tough times but also in the mundane, day to day, ordinary life challenges.

Persevere: steady persistence in a course of action, a purpose, a state, etc., especially in spite of difficulties, obstacles, or discouragement.

I think I’ve said, “I’m done.” Like a hundred times this last month. But I can’t be done. I may need strength, but really I just need to keep going. I gotta persevere!

Go back?” he thought. “No good at all! Go sideways? Impossible! Go forward? Only thing to do! On we go!” So up he got, and trotted along with his little sword held in front of him and one hand feeling the wall, and his heart all of a patter and a pitter.” -Tolkien The Hobbit

I can’t control the ups and downs of life, but I can control how I react.

I want to write my own beautiful story.

I want to listen to the stories of others.

I want to see the beauty and abundance in the hard pathways.

“You crown the year with a bountiful harvest; even the hard pathways overflow with abundance.”

Psalms 65:11 NLT

My simple goal: Read, Pray, Persevere and Guide

Read stories of those who have been there before.

Pray not from relief of daily challenges, but for the strength of spirit in difficult situations.

Persevere and refrain from saying “I’m done.” Go forward!

Guide Others when I am able too. Because we are in this crazy life together and sometimes I’ve got something someone else needs to hear.

2019: Let’s persevere! Then, maybe even I, can survive the zombie apocalypse.

My January Reading List:

  • Finish Girl Wash Your Face by Rachel Hollis (I have like 5 chapters left)
  • The Lucky Few by Heather Avis
  • The Best Yes by Luda Terkurst

January 2, 2019 Cassi Sultemeier Bible study, Family, Thoughts 4 Comments

The Balls I Let Drop

Can I tell you a secret… I’ve been dying to post pictures of my Christmas decorations on Instagram. Seriously, I can’t wait for people who haven’t ever stepped foot in my house to tell me how beautiful my Christmas tree is. How self absorbed does that sound?

But I haven’t because I’ve had to let some balls drop the over the last two weeks.

Week before last my kid and husband got sick. Then I did too.

And because when it rains it pours, it was also a busy week at work. And let’s not even mention the behavior regression that led me to have talk to my child’s school principal and behavioral specialist not once… but three times in two weeks. And not to place blame, but once my husband recovered, he had to get caught back up at work. I felt like I didn’t see him for three days.

All this from a cold. A tiny evil virus that morphed into an infection. Blah!

I also had several friends get sick. ‘‘Tis the season, right? One was a new mom of a four month old trying to “balance” work and a sick baby. And then of course a sick self. What is it about families sharing germs?

We text back and forth and she asked me to pray for her. She was wearing too many hats and felt like she she was failing at everything. She just couldn’t find balance.

Truth 1: We women a great multitaskers, so we often think we can do it all. But we can’t. Let’s just admit that right now. At least not every day and all the time. If you are juggling to much to are bound to drop something eventually. Times of sickness, even a minor cold, can wreak havoc on that balance we have think we have.

Truth 2: finding balance between work, home life, friends is NOT a one time thing. It’s a constant battle. An every day effort. And some days are more balanced than others.

So, how do we cope? How do we navigate life when we want to be awesome at everything all the time but just can’t be?

1. I get by with a little help from friends. Feel free to burst into song

Truthfully, it’s a group effort.

I have co-workers who cover for me. Set up lesson plans for me and tidy my desk on days when I give up and finally take a sick day.

I have a group of friends I text for prayer. Those who I admit to on days when I can’t even.

My husband is my best friend. But when our ship goes down, we typically go down together. Why can’t I be sick and just be me so I can be taken care of?

I’ve also cultivated a very small group of mommas. The kind that give me a fist bump and say, “Solidarity, sister.” When I need someone to vent to because my kid kicked a teacher and now I feel like a terrible mom.

And other friends who simply text me when it’s a jeans day at work. Because nothing helps you get through the day like comfy jeans.

Another friend offered to pick up medicine and dinner for me. I declined, because it was a cold… not the flu or some other plague. But that offer was real and full of kindness.

Tip: if you are in a good place at the moment. Be that kind friend! They are the best!

2. Choose the balls you want to let drop. I’m being real here. If you have too much on your plate, pick what can wait. I’d rather do that, otherwise something will get dropped and it might be something more valuable.

Last week, I let the dishes drop. Yep, the dishes sat in the sink for, gasp, a week and nobody died.

Last week, I left the clean laundry in baskets and piles on the couch.

Last week, I admitted to my work team I was drowning in my own stuff. I asked permission to delay something I always did for them. They let me. They still like me. I hope!

Last week, I told my principal and head of curriculum I was “under the weather” but I would get them those dates they needed next week. I did get them what they needed, but I did it when I was more focused.

Last week, I didn’t help my son study for a spelling test nor did we decorate our school/family gingerbread man project. I focused on his behavior expectations instead. We prayed together, snuggled and talked. That, my friend, has value. He did get his gingerbread man turned in… two days late.

Last week, I set aside my grading and got caught up on my rest. I took a sick day and binge watched a new show and slept. They students all survived a day without me.

Last week, we ate take out and mix matched random stuff from the fridge. But no one went hungry.

If I did this forever, it wouldn’t work. But it was just a week. And the hardest part was setting aside my pride.

This week, I’m rested. I’m mostly caught up on grading after three nights of staying up late. I feel physically and mentally in a better place. I’ll work towards maintaining some appearance of balance and eventually get it together. I might even see my husband this weekend.

I plan on cleaning my house this and posting my my Christmas decoration pictures. But I’ll add an asterisk: last week, I let the balls drop.

Sister, what balls can you let drop this week? What hats do you feel comfortable not wearing for a bit so you can feel more balanced? Can you give yourself permission to not be picture perfect?

December 8, 2018 Cassi Sultemeier Family, Thoughts, Uncategorized 6 Comments

My Other Mommas

My mom wasn’t “the best.” In fact, she was very flawed. My mom was beautiful. She loved Jesus and was a prayer warrior. She inspired me to be a reader, writer, and artist. She laughed at parties and played dress up with me. She always had her camera ready to snap my picture. She loved me. However, she also had a chronic illness and suffered on and off with depression. Life wasn’t perfect. Prayerfully, I had lots of “Other Mommas” step in when my mom couldn’t be what I needed her to be.

In elementary, I thought my momma was the best. And at that time, she was exactly what I needed. But at one point, I remember staying at my Sunday school teacher’s house a lot, eating cookies and being loved on while my mom had doctor appointments.

In middle school, I had my youth minister. She was calm and patient in my life’s stormy night.

In high school, I had my best friend’s mom. Besides having the best stocked pantry, her home was my safe haven and my getaway spot. I always knew I was welcome, and my mom trusted her to keep me safe.

Then I had my transition mom‐the mom that inspired me to pursue college when my family was completely broke and college felt like a dream intended for others. This mom saw the potential in me. She saw what I didn’t.

In community college, I had my hippie mom. She was part of my church, gave me an affordable place to live, taught me a different way to cook, and always invited me to her table for dinner. She even gently scolded me when I came home way too late.

After I got married, I had my mother-in-law. In a culture that says I’m not supposed to get along with her, we struggled at first to find our groove. But whenever we needed anything, she showed up, and I now can’t think of a life without her.

A few years later, my mom left this world and went to meet Jesus. But, regardless of our age, I don’t think we ever stop needing a mom.

Lately, I’ve had a Bible study mom. The mom who inspired me to pick up my Bible more and worry less. She showed me what faithfulness looks like. She gave me the “mom” advice I so desperately needed.

To all my moms, thank you! With society saying that we should do it all on our own, they came alongside my mom to nurture me.

Ladies, there isgood news and bad news. The bad news is you cannot be “THE BEST” mom. You are human and flawed. You can be good, great even, but you can’t meet every need of your child in every season of life. Our culture shouts for perfection and independence. When we compare, we fall short. In contrast, Jesus calls for our humbleness, compassion and selfless love for others.

The good news is we are not alone. I don’t think we were ever intended to be. We are a tribe‐ sisters in Christ. Ruth had Naomi. Mary, the mother of Jesus, had her cousin Elizabeth. At the time of her son’s crucifixion, Mary was surrounded by three other women. Timothy’s mom Eunice had her mom Lois, and together they raised up Timothy.

We are many parts of one body, and we all belong to each other. In his grace, God has given us different gifts for doing certain things well.

‭‭Romans‬ ‭12:5-6‬ ‭(NLT‬‬)

The Bible doesn’t say we need to be able to do ALL things well, only what we are gifted. But since we belong to each other, together we can truly raise up and disciple our children.

Be the Sunday school mom: teach Bible verses, wear a big smile, give warm hugs, and rock fussy babies for that tired new momma.

Be the Youth momma: be a good listener, open your home, give loving advice, be a safe environment for those angsty teens.

Be the Inspiring mom: when the world says they can’t; you say, “I believe in you!”

Be the Hospitality mom: wash the dishes, open your home and your table, bring the covered dish to the momma and family who needs it.

Be the I’m There For You mom: babysit, offer to help out, just show up when needed.

Be the Bible study mom: pray, send bible verses, share words of faith, encourage those struggling mommas.

It’s also okay to be the I Can’t Even Right Now mom: be transparent, be honest, let other mommas come along side you.

Your motherhood isn’t reserved only for your own children, nor do you have to be every mom in every season. Sisters, be who God gifted you to be.

Dedicated to Milly, Olive, Pat, Lana, Diane, Terijo, Lisa, and Marsha.

May 14, 2018 Cassi Sultemeier Family 1 Comment

Learning to Walk

Two weeks ago, on our “snow day”, Em took her first independent steps. Now, she is walking everywhere!

Watching her learn to walk was the most beautiful thing. Watching her slowly let go of her fear, and the cabinet she was holding on to to steady herself, and taking her first few steps. Then, once she realized she could do it… she did it again and again. She laughed; we clapped and cheered.

There is so much joy in learning new things. Going from frustration and tears, to laughter and handclaps. To go from saying “I can’t” and “This is too hard.” To repeating your new learned skill over and over.

As an adult, I get stuck in the “I can’t even” phase too often. However, the hardest seasons in life, often bring so much growth. But if we can remember that image of sheer joy that can follow, that “look at me” type joy, perhaps we can press on. Perhaps the hard part will strengthen us, help us grow, and leave us dancing with joy.

“Dear brothers and sisters, when troubles of any kind come your way, consider it an opportunity for great joy. For you know that when your faith is tested, your endurance has a chance to grow. So let it grow, for when your endurance is fully developed, you will be perfect and complete, needing nothing.”

James 1:2-4 NLT

What are you or your family working toward? Are you still in the hard part? What fear are you holding on to? Are you ready to let go? Or are you on the other side and ready to be greeted by a cheering section?

February 7, 2018 Cassi Sultemeier Family, Thoughts Leave a Comment

2018: Present and Thriving

I’m one of those nerdy people who pick a word for the year. It really does help me focus.

This year, I want to Thrive.

Thrive : to grow or develop vigorously; flourish: -dictionary.com

Honestly, I’m tired of living in survival mode. Last year we seemed to go from one minor crisis to another: tummy bugs, flu, seizures, work deadlines, ear infections, fevers and more seizures, RSV, pneumonia, family members surgeries, maternity leave budget fiasco, and other things.

“God hasn’t invited us into a disorderly, unkempt life but into something holy and beautiful—as beautiful on the inside as the outside.” – 1 Thessalonians 4:7 MSG

I felt like I was the one always asking for help, and not able to give it. And maybe that’s just the season I’m in, but it hasn’t made me happy.

I asked a friend what my WORD should be. She said… Present. She knows me. She knows the struggle. And while I may want a year to thrive, a year with big lofty goals, just being present would be the best place to start.

Present in my children’s lives.

Present in my friends lives.

Present for my family.

Fully present… phone down, mind focused on the here and now, releasing anxiety, not worried about the future, living in the moment, and savoring the good.

Present at work.

Present at home.

Present over perfect.

“This is actually my life, and it doesn’t matter a bit bit if it would be lovely for someone else to live. What does matter: does it feel congruent with how God made me and called me?” -Shauna Niequist in Present over Perfect

I want to flourish in this season of little ones, work hard both at home and work, and find balance in between.

When I work toward being present, it will make it easier to thrive.

What word or words do you need spoken into your life this year?

How do these two words translate into actual goals?

  • Clean after the kids go to bed or before they wake up. (At least during the week)
  • Set aside 15 minutes for myself in the morning. (Which means waking up a bit earlier.)
  • Plan weekly date nights with my husband. (Even if it’s staying up late after the kids go to bed.)
  • Reserve social media for set times. Not to check it all day. (Last year I turned off push notifications… best idea ever)
  • Do things that restore my soul: read, write, rest.

January 4, 2018 Cassi Sultemeier Family Leave a Comment

Next Page »

Copyright © 2021 · Expose Pro Theme on Genesis Framework · WordPress · Log in