Food is one of my joys. Some of my best family memories are around family dinners. Sharing a meal can bring people together. But with my tiny person, food is a battle ground

“So your kid is a picky eater too?” 

“He will eat when he is hungry.”

“He will grow out of it.”

I hate these words. I often feel like nobody really gets it. That no one really understands. I’m pretty sure most people don’t.

That battle ground has a history: years of struggle, an occupational therapy diagnosis of sensory aversion, and a diagnosis of autism with restrictive and repetitive behaviors.

My kid actually started loosing significant weight at age 2 due to him not eating anything I was fixing. Then, the doctor suggested feeding him whatever he would actually eat. And lots of it. So I did.

Then we fell into the “only eating a handful of things” trap. All of which had the exact same texture.
My friends suggest we go to a kid friendly place so my son can eat. I laugh. They mean well, but that won’t help.

Now, my son eats between 5-15 foods, none of which are on any menu. Recently he asked the guy at Chicken Express for peanut butter crackers. I don’t think he really heard him, but my husband and I had a good laugh. I have gotten really good at bringing his food to restaurants. I used to order an extra plate and act like I’m going to share my food just so we don’t stand out. Nowadays, I don’t even care.

Our current menu:

Peanut butter crackers (protein)
Waffles
Cereal
Chips
Crackers
Cereal bars
Muffins (you can hide a lot in a muffin)
Yogurt
Puréed fruits and veggies (squeezable baby food)
And sometimes turkey bacon. If I’m lucky. 

One time, I started full on crying when I say a two year old eating a banana and I realized my kid never had one. I’ve longed for him to eat fresh fruit, veggies, heck ice cream or candy…. seriously anything.

We started our OT therapy journey right after our son turned 4. We have been wanting to get private therapy for two years, but due to insurance issues and lack of a diagnosis, we had to wait.

I really expected therapy to just fix him. I had read many books and tried multiple approaches and nothing made significant changes.
After our first few visits, the therapist played a game involving food. She got him to eat a French fry. That’s right. I just waited months, nay years, to pay someone to convince my 4 year old to eat a stupid French fry.

He says he doesn’t like it. I feel there is so much irony in this.

Since then, we have been playing the same game at home. It’s nice to get him to try new foods. Tiny bites really. And it doesn’t work every time. It takes so much effort on our part to be both encouraging and persistent.

 

 

 

 

 

 

 

 

 

 

 

 

One of my best moments was when I realized he likes tea. I can take him out to coffee shops or Starbucks, because green tea is his favorite. But he just doesn’t like French fries!

I would love to just eat, drink and be merry. 

Until then, he will eat the same damn things. Food is food, and calories are calories. We will play games with our food. And I’ll pay a therapist to get my kid to try even the most kid friendly type of foods.

I’ll try really hard to remember that my child  is more than his self restrictive diet. He is funny, goofy, full of energy and lights up my life with his joy.

And we can always just go to Starbucks. Because my kid is just too cool for French fries.

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Welcome to Voices of Special Needs Blog Hop — a monthly gathering of posts from special needs bloggers hosted by The Sensory Spectrum and The Jenny Evolution. Click on the links below to read stories from other bloggers about having a special needs kiddo — from Sensory Processing Disorder to ADHD, from Autism to Dyslexia!